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Koolen De Vries France

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THE SYNDROME

Learn more about Koolen De Vries syndrome, 17q21.31, KANSL1 ...

Photo d'un enfant Koolen De Vries
WHO ARE WE ?

Find out more about the KDVF association ...

Photo d'un enfant Koolen De Vries
PARENTS ' QUESTIONS
(FAQ)

The questions we all asked ourselves ...

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CONTACTS

Find all the contact details of the KDVF association

PARENT MEMBER AREA

Enter the area reserved for parents who are members of the KDVF association ...

Reunification of the Koolen De Vries families 2021
169 DAYS TO THE EVENT
30 Oct, 15:00
ETHIC ETAPES Loire Valley
A festive weekend of exchanges and sharing for families affected by Koolen De Vries syndrome.

D'autres informations et dossier d'inscription à compléter et renvoyer par courriel sur la page

REGROUPEMENT 2021

de ce site.