top of page

Sat, 30 Oct



Reunification of the Koolen De Vries families 2021

A festive weekend of exchanges and sharing for families affected by Koolen De Vries syndrome.

Les inscriptions sont closes
Voir autres événements
Reunification of the Koolen De Vries families 2021
Reunification of the Koolen De Vries families 2021

Heure et lieu

30 Oct 2021, 15:00 – 01 Nov 2021, 15:00

ETHIC ETAPES Loire Valley, 37 Rue Pierre et Marie Curie, 41000 Blois, France

À propos de l'événement

Are you parents of Kool Kid and still hesitating to participate?

In addition to this, you will need to know more about it.

You are not the only ones, this hesitation was mentioned by some members during the last General Assembly. Parents, like you, indicated that they probably weren't ready to participate in this type of weekend yet.

Many must have changed their minds after hearing from those who have already met other families, regardless of the setting or the age of the children, because all said they found it very positive for themselves, their kools kids. but also the siblings and all added to be eager to meet again.

In addition to this, you will need to know more about it.

Testimony of a mother's return.

"From experience, and to reassure you, during this type of regrouping, we are all there because we experience the same joys, pains and questions. Also, even if we do not express them in the same way, meeting others people do a lot of good. We recognize each other, we no longer feel alone in the world. It allows us to recharge our batteries through sharing. And then, we are not just talking about disability, these are also festive moments.

With my husband and my daughters, we made our first reunions in England (2) then at I. and P., parents of a Kool Kid wishing to meet others (2 too). Each time, everything was very simple, we had the impression of being part of a new family, family of hearts and common struggles.

I remain convinced that whatever our state of mind, our ability to accept disability more or less quickly, these meetings allow us to make a leap and assert ourselves as parents, parents of disabled children. And this is also valid for siblings who see that other children, adolescents, even young adults are going through the same thing as them and doing very well. They too can share with peers and without parents. "

In addition to this, you will need to know more about it.

We remain of course at your disposal to discuss this subject if necessary and you will find reports on past meetings on the parent members pages of the WEB site. If even after all this you don't feel ready right away, that's okay, we look forward to hosting more such events in the years to come.


  • 1 hour 30 minutes

    Accueil et installation des familles

  • 1 hour 15 minutes

    Moment de convivialité autour d'un goûter

19 more items available

Partager cet événement

bottom of page